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SUSAN JOHNSTON OWEN-JAZZ  /  SITE OWNER/MUSICIAN, WRITER,ARTIST, ELEMENTARY AND SPECIAL EDUCATION TEACHER (RETIRED)

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 SEARCH IN THE BLUE BOXES BELOW OR LOOK AT THE TABLE OF CONTENTS IN THE 2ND BOX

FIBROMYALGIA

FIBROMYALGIA

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THIS IS ME-FAITH HILL

A


 


NEW-WRITTEN BY SOMEONE WHO KNOWS THIS ILLNESS TOO WELL- ME

AND THEN I LOST MY TEMPER

August 26, 2010

There is a link included because it is my wish for people to understand this *FAKE* illness which plagues more people than anyone realizes. The term *fake* is used sarcastically because it is anything but.

Today I had a run in with someone who claims to love me. After an explanation that my life was currently overwhelming and it took all of my strength to talk for even five minutes. I got a sarcastic;” Okay I can take a hint.?” For the first time in weeks it seemed to be a good idea to sit down and cry. What is so hard to understand? Probably everything to someone who does not live in emotional or physical pain 24/7 will be. After teaching for twenty five years it was my vow to never use text talk. Well, guess what? I use it and can’t apologize for getting the message across as quickly as possible. Is it selfish to say? I have to take care of myself for awhile?? Things will never be like they were with me ever again. My goal is not to gain pity, attention or anything other than understanding. There are days when the overwhelming drain of the world has to take a backseat. This comes from my heart. Hell, my life was dancing, performing, teaching, raising a family, keeping a home, etc. Why would anyone assume that my heart is not broken by these flares that leave me feeling almost hopeless? It’s the same for anyone with a debilitating illness whether physical, mental or both. After awhile you look for a way to survive. If someone needs to back away, block or not be involved, how can we give fault? I have one person blocked, not because I hate them, I’m just very tired of never knowing from one day to the next whether they’re my friend that day or not. Letting someone move on for their own sanity is perhaps the kindest thing a friend can do for someone they want to hold onto with both hands.

When people are forced to deal with illness they do many different things: try to help or at least listen, research and try to find all the info they can on the subject (you probably have done that yourself) but it’s very kind, or block you mentally or in any way they can and run like hell. Illness is scary, it hits too close to our own human frailty. The first time someone close to your age dies; that’s the feeling. I’m not speaking from any professional agenda, just my heart. This could be about any chronic illness one may have to deal with whether it be as the person suffering or the one who has to deal with that person. My son sheepishly asked last night if I was okay. He said, “Mom, the sleeping sign is on your door a lot lately, are you going to die?” My heart broke in two as I hugged him and promised him that this was a temporary setback. I told him, someday, but for now you’re stuck with me. No one wants to be ill, it’s just life. As humans we’re doing the best that we can. Some do a better job than others. © 2010 SUSAN JOHNSTON OWEN

 

 

 

 

For  more info.http://www.fmaware.org/     Fibro awareness Association

 

NEVER GIVE UP

 

The 10 Most Common Signs of Fibromyalgia

By: Emily Lockhart on Tuesday, August 6th, 2013 @ 2:42 pm  61

Causing widespread pain to an estimated 5.8 million people in the United States, Fibromyalgia is a musculoskeletal disorder that amplifies the way the brain processes pain, often leaving the body’s pain receptors in hyper drive.

The condition causes widespread pain—and in turn fatigue, sleep deprivation, and depression—and typically begins following some type of severe physical trauma, such as an accident, surgery, or massive psychological stress.

Fibromyalgia patients complain of a myriad of symptoms associated with pain throughout the entire body. Here are the ten most common symptoms of fibromyalgia…

1. Pain

The primary symptom of fibromyalgia is continuous stabbing pain throughout the entire body.  However, some patients suffer pain only at certain times—for instance, if the weather is damp or stress is high—while others feel it primarily in certain areas (i.e., the legs).

CLICK LINK FOR MORE

http://www.activebeat.co/your-health/the-10-most-common-signs-of-fibromyalgia/?utm_source=google&utm_campaign=adwords&utm_medium=cpc&utm_keyword=fibromyalgia&gclid=CJOZhaCtgLwCFWoS7AodA0wApw

 

FIBROMYALGIA

Fibromyalgia syndrome affects the muscles and soft tissue. Fibromyalgia symptoms include chronic pain in the muscles, fatigue, sleep problems, and painful tender points or trigger points at certain parts of the body. Fibromyalgia pain and other symptoms can be relieved through medications, lifestyle changes, stress management, and other fibromyalgia treatment.

 The best site I have found to understand this disease is Web MD.

My life changed drastically about twenty years ago when my day to day chores became impossible to accomplish. Every inch of me was painful and I could not keep regular sleep hours. I'd be awake all night and then have to go off to teach school. Every part of my life said FAIL and the doctors didn't have a clue

.Each dr. had a different theory and they usually sent me to a psychologist or psychiatrist. I remember one humiliating week being tested for epilepsy. I was given numerous drugs which only made the problem worse and turned me into an  addict. My family was about to give up on me when I finally found a dr. who said, "You really are very sick." This didn't make me sad, it was a relief.  With his help and a great deal of patience, I'm now on a medication regimen, that helps, but does not make me intoxicated.

I'm a difficult patient because I can't take nsaids or aspirin, and cymbalta tears up my stomach. I've now gotten to the point where a one month supply of meds will last for three and I function as a human being. I still suffer from flares and need seven day medrol packs (cortisone), but life is good. There is hope if you are persistent.

 


CHRONICALLY ILL PEOPLE ARE FIGHTING A DAILY WAR WITH THEIR ONLY AMMUNITION BEING "PERSONAL STRENGTH".  IT'S OUR DESIRE TO KEEP IN THE "LIFE" GAME, BUT SOMETIMES WE MUST ACCEPT THAT WE'RE DIFFERENT. IMAGINE LIVING 24/7/365 WITH SOMEONE TWISTING YOUR MUSCLES LIKE AN OLD RAG, NEVER LETTING UP. ALL WE WANT TO BE IS NORMAL, NOT PITIED. JUST LIKE A DIABETIC WHO MUST STICK THEMSELVES WITH A NEEDLE A FEW TIMES A DAY, IT'S THEIR LOT, BUT SOMEDAYS IT'S TOO HARD TO BE BRAVE. WHEN I MAKE PLANS AND CAN'T KEEP THEM; IT BREAKS MY HEART.

WHEN SOMEONE SAYS, "SUFFER IN SILENCE", IT MAKES ME THINK THAT I SHOULD BE ASHAMED OF SOMETHING BEYOND MY CONTROL. IF YOU KNOW SOMEONE WHO HAS HAD A SEVERE INJURY, OR ATHLETIC TRAUMA, CHANCES ARE, YOU KNOW SOMEONE WITH FIBRO. BE PATIENT, THIS CAN HAPPEN TO ANYONE.

 

http://www.webmd.com/fibromyalgia/default.htm

 

Fighting Fibro


 

Papers strew the bed,
there's no time to do the work.
She is lost in pain,
arguing with her body,
when will the strain disappear?

Raising arms she cries,
clutter won't go away.
How does she begin?
Overwhelmed by what to do,
rolling over perhaps to sleep.

Hours go by no peace,
Slowly she moves toward the job.
Sitting, she sobs hard,
looking at the room she sighs.
When did this happen to her?

Her life needs a victory,
refusing to lose her freedom,

inch by inch, she begins.

sjo/jazz

 

 

http://www.webmd.com/fibromyalgia/default.htm

 

He Never Asked

Unable to face reality, was the lie for him?
Was he the first to make her take pause,
knowing pain she would make him claim?
The reflection in the mirror is beautiful,
only she knows of her gruesome ghosts.

Scars on her torso seek her attention;
no one may bombard her powerful wall.
One day she let her guard go for a minute,
never to open her wounds, but her wiles.
Laughing needed, the past held her torment,

wanting  her own,"wish street", dreams in vain.
Bottling alarm, she took the life given,
aware of her fate, she wrings the days dry.
Knowing her fault in not telling him more,
no surprises when he slammed the door.

Tears had consumed her, she knew she'd die.

If he had pushed for her genuine reality

would have seen, not be defeated, thrown.
If he had confronted, stopped playing sleuth,
he'd not feel betrayed, he'd know the truth.

© 2010 sjo/jazz





http://www.cnn.com/2010/HEALTH/02/22/medical.marijuana/

Why marijuana sometimes helps

Our bodies naturally make pain relievers called endorphins, but they also make other substances that can trigger pain relief in the so-called endocannabinoid system. This system seems to play a key role in many processes in the body, including modulating how we feel pain. Marijuana contains cannabinoids very similar to those that occur in the body naturally.

Fibromyalgia patients typically experience bodywide pain, but they must often take multiple drugs for other symptoms, which can include difficulty sleeping, restless legs syndrome, depression, and anxiety. However, marijuana may treat multiple symptoms, and some patients are seeing results.

It seems logical -- why shouldn't fibromyalgia sufferers try marijuana for their symptoms, if they live in a state where medical marijuana is legal?

But there are two problems with herbal cannabis, Silverman and other critics say: It's a complex natural substance that contains about 60 different compounds with potentially medicinal effects, some of which may interact with one another. The other problem is that the amount of these various compounds may vary by batch, as marijuana is not synthesized but grown.

While Silverman says he has great hopes that synthetic medicines based on individual compounds in cannabis may one day help fibromyalgia patients (after appropriate randomized controlled clinical trials have been done), he argues that the real thing today is just too inconsistent.

"We think that there's probably a role for that class of compounds, the cannabinoids in general, and it's just a question of working out how that's going to be put into practice," says Mark Ware, M.D., an assistant professor in family medicine and anesthesia at McGill University, in Montreal, and the executive director of the Canadian Consortium for the Investigation of Cannabinoids.

PLEASE READ THE LINK







SOME OF THESE QUOTES TELL ME THE PERSON TRULY UNDERSTANDS, OTHERS SAYS THAT THEY DON'T HAVE A CLUE.

Every nerve that can thrill with pleasure, can also agonize with pain.

HORACE MANN, A Few Thoughts for a Young Man

A little bit of pain is good for you. I feel alive. Everybody needs struggle. Once you overcome an obstacle, you springboard into the future. Life is interesting and short and it's not supposed to be easy, and if it is, you're probably just in denial and you're existing here like a zombie.

PAMELA ANDERSON

Sweet is pleasure after pain.

JOHN DRYDEN, Alexander's Feast

The power to cause pain is the only power that matters, the power to kill and destroy, because if you can't kill then you are always subject to those who can, and nothing and no one will ever save you.

ORSON SCOTT CARD, Ender's Game

Politeness only teaches us to save others from unnecessary pain.... You are not bound by politeness to tell any falsehoods.

MARIA EDGEWORTH, The Flowerpot

Effort is only effort when it begins to hurt.

JOSÉ ORTEGA Y GASSET, as quoted in Jason A. Merchey's Building a Life of Value

Pain can be endured and defeated only if it is embraced. Denied or feared, it grows.

DEAN KOONTZ, Velocity

Sometimes it is harder to deprive oneself of a pain than of a pleasure.

F. SCOTT FITZGERALD, Tender is the Night

Pain is rewarding, in every capacity.

CHRISTINA AGUILERA, Rolling Stone, Aug. 24, 2006

I hate all pain,
Given or received; we have enough within us
The meanest vassal as the loftiest monarch,
Not to add to each other's natural burden
Of mortal misery.

LORD BYRON, Sardanapalus

Lord, help us to accept the pains and conflicts that come to us each day as opportunities to grow as people and become more like you.

MOTHER TERESA, A Gift for God

Pain can only feed on pain. Pain cannot feed on joy. It finds it quite indigestible.

ECKHART TOLLE, The Power of Now

Pain is a part of growing up. It's how we learn.

DAN BROWN, Angels & Demons

Pain must enter into its glorified life of memory before it can turn into compassion.

GEORGE ELIOT, Middlemarch

Of all the things we can feel with our minds and bodies, severe pain is the purest, for it drives everything else from our awareness and focuses us as perfectly as we can ever be focused.

DEAN KOONTZ, Dark Rivers of the Heart

One word
Frees us of all the weight and pain of life:
That word is love.

SOPHOCLES, Oedipus at Colonus

To hurt is as human as to breathe.

J. K. ROWLING, The Tales of Beedle the Bard

People come and go, pain comes and goes. But so does joy. And if our hearts are closed because we don't want to suffer, they won't be open enough to recognize the joy as it flies by.

GENEEN ROTH, Good Housekeeping, Dec. 2008

Pain is a gift. Humanity, without pain, would know neither fear nor pity. Without fear, there could be no humility, and every man would be a monster. The recognition of pain and fear in others gives rise in us to pity, and in our pity is our humanity, our redemption.

DEAN KOONTZ, Velocity

There are cases in which it is necessary to inflict pain now to avoid greater pain later on, or to gain future pleasure that is worth the current pain.

SUSAN HUBBARD, The Society of S

You want to find out a mode of renunciation that will be an escape from pain. I tell you again, there is no such escape possible except by perverting or mutilating one's nature.

GEORGE ELIOT, The Mill on the Floss

Pain has a way of clipping our wings and keeping us from being able to fly ... and if left unresolved for very long, you can almost forget that you were ever created to fly in the first place.

WM. PAUL YOUNG, The Shack

Pain and illness, the deaths of those one loves, and discomforts and disappointments mar the happy norm, but they do not alter the fact that happiness is the norm, nor affect the tendency of the continuum to restore it, to heal it, after any disturbance.

JEAN LIEDLOFF, The Continuum Concept

Wherefore groan and lament over pain? Be, rather, thankful for this one sign of life; for the dead suffer no pain, and lay figures are never chilled by frost.

IVAN PANIN, Thoughts

Mortal! that cull'st the flowers of life,
Think not to escape the thorn.

WILLIAM B. TAPPAN, "The Thorn of Life"

When we are suddenly released from an acute absorbing bodily pain, our heart and senses leap out in new freedom; we think even the noise of streets harmonious, and are ready to hug the tradesman who is wrapping up our change.

GEORGE ELIOT, Janet's Repentance

Pain ... has a structure. It has a floor plan. It has designs more intricate than a chambered nautilus, features more baroque than the most buttressed Gothic cathedral.... it is a poem.

 

 

INSURANCE IS STILL SLOW WITH COVERAGE OF LYRICA AND CYMBALTA

THEY ALSO HAVE SIDE EFFECTS I CAN'T HANDLE.

 

http://b4tea.blogspot.com/2013/05/mind-what-you-eat-to-manage-your.html


http://thegirlinyogapants.com/category/living/fibromyalgia/fibromyalgia-tips/


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